Major frustrations for anal cancer patients include not having access to quality and relevant support services and feeling isolated due to the difficult stigma associated with the disease. Consequently, many anal cancer patients face obstacles connecting to other people with similar diagnoses and treatments. Here are some resources to help tackle these problems. If there is something that you have found useful, but is not listed below, please share it with us.
Peer to Peer Support Program We are excited to announce the launch of our Peer to Peer Support Program. The Peer to Peer Support Program is a free service provided by the HPV and Anal Cancer Foundation that matches thrivers (our word for survivors) with volunteer thrivers and caregivers with volunteer caregivers. To register for the program, click here.
Online Discussion Forums
Rare Cancer Alliance has an active online community for anal cancer and other rare cancers.
Yahoo! Groups has an online anal cancer community.
American Cancer Society has its own anal cancer discussion board.
Blog for a Cure offers free personal web publishing services for cancer survivors. It provides a way for individuals to tell their stories and interact with each other.
Inspire! by the National Cervical Cancer and HPV Coalition offers online community support for those affected by HPV-related diseases.
Macmillan has an anal cancer specific forum with a very active community.
General Cancer Hotlines
CancerCare provides free, professional support services to anyone affected by cancer, including people with cancer, caregivers, children, loved ones and the bereaved. This includes telephone support groups for metastatic patients.
The R.A. Bloch Cancer Foundation provides a volunteer-run hotline for newly diagnosed patients, as well as multidisciplinary second opinions. They match up newly diagnosed patients with someone who has had that type of cancer.
The United Ostomy Associations of America offers support groups for people with ostomies.