GET SCREENED: UCSF and the LGBT Cancer Network list providers by state specializing in anal precancer screening. Anal cancer can be prevented if it is found and treated in it’s precancerous stages. If you believe you are at risk, or notice symptoms, get screened today. Linking to these lists does not reflect an endorsement by the HPV and Anal Cancer Foundation by any of these providers.
The American Society for Colposcopy and Cervical Pathology (ASCCP) aims to improve clinician competence and performance and patient outcomes through educational activities focused around the study, prevention, diagnosis, and management of lower genital tract disorders.
American Social Health Association (ASHA) is a non-profit that provides information and support for people affected by Sexually Transmitted Infections (STI). This is the link to their HPV and Cervical Cancer Prevention Resource center.
Cancer Research UK has comprehensive downloadable guides about anal cancer. It is a great starting place for information about the disease.
HPV Today publishes newsletters on the latest research in HPV and offers e-subscriptions.
The International Anal Neoplasia Society (IANS) was seed funded by the Anal Cancer Foundation and the Farrah Fawcett Foundation. IANS’ mission is to provide a forum for exchange of ideas and dissemination of knowledge regarding the pathogenesis, diagnosis, treatment and prevention of anal neoplasia among individuals with a broad spectrum of background, viewpoints and geographic origin. Sign up for the first conference in November 2013.
The International Papillomavirus Society’s mission is to facilitate research on human and animal papillomaviruses and their associated diseases. Links to the medical abstracts from its most recent annual conference can be found here. A summary of our notes from the lectures we attended can be found here: IPV 2011 Summary and HPV 2010 Summary.
International Pelvic Pain Society (IPPS) provides support to pelvic pain professionals and their patients. The following links will help with finding a provider and answering anonymously submitted questions. The site also offers a downloadable patient booklet and other resources that help patients with pelvic pain.
National Comprehensive Cancer Network is not-for-profit alliance dedicated to improving the quality and effectiveness of care provided to patients with cancer. They have guidelines for treatment of anal cancer. Many patients have found them helpful to read, print out, and give to their oncologists for discussion. You must register with the website to have access to the anal cancer guidelines.
The Physicians’ Research Network (PRN) provides ongoing support for medical providers caring for people who have been infected with HIV and/or viral hepatitis. PRN provides CME services and has information about anal health.
Section on Women’s Health is an organization that supports physical therapists specializing in the health concerns of women and men, including pelvic pain, incontinence, and osteoporosis. This is the link to their PT (physical therapist) locator.
University of San Francisco Department of Medicine has comprehensive information about anal cancer treatment, diagnosis, and screening. It is useful for both doctors and patients. A comprehensive list of High Resolution Anoscopy (HRA) providers can be found here.