Our Impact

I want to thank all for creating the foundation and website. 9 years ago when I was diagnosed there was little information available. I had to do a lot of research on my own. The work you are doing is awesome! No one should ever die from anal cancer.

Maria

Since the Foundation’s inception in 2010 we have dedicated ourselves to improving the lives of anal cancer thrivers, supporting and funding research for anal cancer as well as HPV-related cancers, creating a collaborative space for clinicians to share knowledge and ideas, and moving the pendulum forward in increasing vaccination rates for girls and boys. We continue to work with leaders in the field to not only eradicate HPV-related cancers for future generations, but to eliminate research and scientific silos and bring improved and novel treatments to those diagnosed with anal cancer.

Our staff and boards work every day to improve the once bleak landscape facing the anal cancer community. It is our promise and commitment that tomorrow will  be different for our community!

The difference your 2021 contribution made

The First Anal Cancer Patient Conference

The First Anal Cancer Patient Conference

In September over 440 thrivers and professionals participated in the virtual conference from 20 countries around the world. Anal Cancer Foundation Co-Founder Justine Almada facilitated the day's events.

Experts including Drs. Joel Palefsky, Cathy Eng, Karyn Goodman, and Paul Romesser spoke about anal cancer causes, treatments, emerging therapies, and how to mitigate the various side effects of chemoradiation. Anal Cancer Thriver and Activist Marcia Cross and Cervivor's Tamika Felder shared their own stories, guiding the audience to use their personal experiences to advance the fight against anal cancer. Thrivers were given the opportunity to ask questions live, as well as connect with each other.

Accelerating Early Diagnosis and Prevention

Accelerating Early Diagnosis and Prevention

In critical news for the goal of ending anal cancer, our collaborators at the ANCHOR study have shown that anal cancer can be prevented by routine screening and removal of precancerous cells.

A decade ago, the Anal Cancer Foundation built and led the coalition of organizations that supported and pushed for this research. The large, randomized, controlled trial specifically showed that treating precancerous anal cells can significantly reduce the risk of progression to anal cancer among people living with HIV, the group at highest risk for developing anal cancer. The study was halted early due to the therapy’s high success rates and we expect the results will be published in 2022.

The First Patient Version of Clinical Treatment Guidelines

The First Patient Version of Clinical Treatment Guidelines

In coordination with the NCCN, we produced the first anal cancer treatment guidelines for patients — a user-friendly version of the complex medical guide that sets national treatment protocols for anal cancer.

This new anal cancer treatment guide presents clinical information in an easy-to-read format for people with cancer and those who support them. The creation of this 60-page resource is a critical step to empowering patients with the same information as their doctors, allowing for informed, shared decision-making about their treatment.

Global Efforts to End HPV Cancers

Global Efforts to End HPV Cancers

In December 2019, our NOMAN Campaign launched an initiative in the European Parliament to eliminate HPV Cancers and diseases in Europe. Just 14 months later, we're delighted to report a significant breakthrough in the program.

Europe's Beating Cancer Plan, a roadmap of the EU's public health efforts against cancer, for the first time will dedicate funds to support Member States’ efforts to vaccinate both boys and girls against HPV. The objective is to vaccinate at least 90% of the EU target population of girls and to significantly increase the vaccination of boys, by 2030.

This is a massive victory and indicative of the growing recognition that one of the greatest opportunities we have to prevent cancer is through gender-neutral HPV vaccination.

Cultivating Community & Increasing Access to High-Quality Information

Cultivating Community & Increasing Access to High-Quality Information

The COVID-19 pandemic has disproportionately affected the cancer community and those caring for loved ones. Unfortunately, the anal cancer community has not been immune to this trend. In fact, the demand for our services has never been higher.

Just this year:

800+ people participated in our informational forums such as the Anal Cancer Patient Conference and the Pelvic Floor Therapy webinar,
120+ anal cancer thrivers and caregivers signed up to be matched through our Peer-to-Peer Support Program,
175+ were helped by our patient navigation services, and
Thousands more gained knowledge through our in-depth treatment, prevention, and side effect guides.

Knowledge is power and we are focused on ensuring that people facing anal cancer have the tools to thrive.

Supporting Our Work

Supporting Our Work

Did you know that if you sign up for Amazon Smile and select the Anal Cancer Foundation as your charity of choice, we get a small contribution from Amazon each time you shop?

Please visit our Donation page to learn more about this and other ways to support our work. We appreciate every single gift. 100% of contributions goes to programs to raise awareness, accelerate early detection, improve quality of life, and accelerate a cure.

None of this work would be possible without you.