I want to thank all for creating the foundation and website. 9 years ago when I was diagnosed there was little information available. I had to do a lot of research on my own. The work you are doing is awesome! No one should ever die from anal cancer.

Maria

Since the Foundation’s inception in 2010 we have dedicated ourselves to improving the lives of anal cancer thrivers, supporting and funding research for anal cancer as well as HPV-related cancers, creating a collaborative space for clinicians to share knowledge and ideas, and moving the pendulum forward in increasing vaccination rates for girls and boys. We continue to work with leaders in the field to not only eradicate HPV-related cancers for future generations, but to eliminate research and scientific silos and bring improved and novel treatments to those diagnosed with anal cancer.

Our staff and boards work every day to improve the once bleak landscape facing the anal cancer community. It is our promise and commitment that tomorrow will  be different for our community!

The difference your 2019 contribution made

Advancing a Cure for Anal Cancer

Advancing a Cure for Anal Cancer

IANS, the International Anal Neoplasia Medical Society created with a seed grant from the Foundation, held its first scientific meeting in Europe and the fifth meeting since its inception in 2012. Professional societies dedicated to creating medical training and treatment guidelines are essential to disease management and prevention. Until 2012, no such society existed for anal cancer. The society supports research that is essential to obtaining resources and attention for anal cancer.

Just last year, multiple IANS members published a study showing the rate of new anal cancer diagnoses, or incidence, increasing 2.7% per year from 2001-2015, and mortality increasing 3.1% per year from 2001-2016. Research like this is both alarming and so important to improve attention and resources to this crucial issue.

Supporting You

Supporting You

As always, we hope you remember to take care of yourselves as thrivers, caregivers, and advocates. If you feel overwhelmed, reach out to us. The thriver community is here for you!

Our peer support program, founded because we recognized the lack of interpersonal resources for the anal cancer community, had its strongest year of growth yet! Applications were fueled by a supportive online community and thriver advocates. This year, we made over 75 thriver and caregiver connections. Meanwhile, many relationships created from prior years are still going strong.

Despite gains being made every day, we continue to hear from thrivers about misdiagnosis, incorrect treatment, and poor explanation of one’s options by medical teams. This program is one way the Foundation is working to combat these issues.

Global Vaccine Advocacy

Global Vaccine Advocacy

Following our nine-year advocacy campaign, the importance of vaccinating both boys and girls against HPV continues to grow. For the first time, boys in the UK began to receive the HPV vaccination. In the US, boys have been vaccinated alongside girls since 2011 yet vaccination rates remain low with just 40% of girls and 41% of boys completing vaccinations by the recommended age.

Last summer, fifty-eight NOMEN took to the waves to end HPV - our largest fleet yet! Our program, the NOMAN Campaign, sponsors extreme endurance athletic challenges to raise awareness about the carcinogenic impact of this virus. NOMAN works with think tanks and public health agencies to increase HPV education and vaccine uptake through coalition-building, public education, and public health policy change.

Improving Medical and Public Awareness to End Deaths from Anal Cancer

Improving Medical and Public Awareness to End Deaths from Anal Cancer

By deepening knowledge of anal cancer in the medical and scientific communities and encouraging more anal cancer thrivers to share their stories, we are committed to turning anal cancer into a disease that people are empowered to talk about, invest in, and cure.

This year’s efforts in the medical and scientific communities included speaking roles and/or booths at a number of 2019 conferences. These included events with the American Cancer Society, National Comprehensive Cancer Network, a panel engagement with the Atlantic Magazine featuring Marcia Cross, IANS, and representation at BIO 2019 and the National Organization for Rare Disorders’ conferences.

Illustrating a milestone in the efforts to raise awareness about anal cancer on a larger stage, US Rep Kathy Castor and the Biden Cancer Initiative invited Foundation co-founder and Executive Director Justine Almada to the first congressional briefing on cancers caused by HPV. Justine and an anal cancer thriver shared patient stories and educated public health officials about the experience of having anal cancer. We are seeing the start of real change in the landscape for anal cancer thrivers and everyone impacted by all HPV cancers.

Foundation Honored

Foundation Honored

The Foundation is an international leader in ending HPV and anal cancer. We were honored to receive national recognition with an award from the American Cancer Society’s National HPV Vaccination Roundtable. Executive Director Justine Almada also received an award for her leadership in the prevention and treatment of AIN and anal cancer at the fifth scientific meeting of IANS.

Supporting Our Work

Supporting Our Work

Did you know that if you sign up for Amazon Smile and select the Anal Cancer Foundation as your charity of choice, we get a small contribution from Amazon each time you shop?

Please visit our site to learn more about this and other ways to support our work. We appreciate every single gift. 100% of contributions goes to programs to raise awareness, accelerate early detection, improve quality of life, and accelerate a cure.

None of this work would be possible without you.