Hello, my name is Marie and I was diagnosed with anal cancer in 2016. I was 66 years old and I was in great shape: an avid runner, I always followed a healthy diet.
I was experiencing pain and bleeding for about one year but I thought it was just hemorrhoids. I went to a oncology surgeon who initially told me it was nothing and sent me away telling me to take a fiber drink. The pain didn't go away and I returned to the doctor who did another rectal exam, and that's when he felt something. He scheduled me for a biopsy and I was upset at the time because he didn't list that he would remove my hemorrhoids.
I also had signed up for a 8 mile race that was coming up so I asked him if we could wait - that's when he got angry at me and said, no this has to be done ASAP. We did a biopsy and it came back positive for HPV-associated anal cancer.
When the doctor told me I had cancer (stage 2 squamous cell carcinoma) I felt like I wasn't hearing him right. Well, things after that happened so fast, first seeing the hematologist and then the oncologist. I had 6 weeks of chemo and radiation and got so sick, and my bottom was so sore I could hardly sit down. Once my treatment ended and I went back to running, the treatment had affected my bones to the point that I ended up with stress fractures to my femur head and both sides of the back of my pelvis. I have also developed multiple clots, deep vein thrombosis and pulmonary embolism in both lungs.
It's been almost 2 1/2 years and my white blood cell count is still low and I suffer from pelvic radiation disease. If you don't know what it is please read about it.
I'm still not back to my old self, and I constantly worry about my cancer returning. I take life one day at a time now.
Looking for someone to talk to about your anal cancer diagnosis? We are here to help. The Peer to Peer Support Program is a free service provided by the Anal Cancer Foundation that matches anal cancer thrivers (our word for survivors) and caregivers with thriver volunteers and caregiver volunteers.